Seminar title: A national Framework of Values and Principles for Public and Patient Involvement in Research.

Summary: Professor McCarron’s talk will focus on the National Framework of Values and Principles for Public and Patient involvement in research. Over the past year, a group of PPI contributors and researchers have been co-designing a set of values and principles to drive excellence in Irish PPI. Trinity College Dublin and the PPI Ignite Network are proud to launch this framework of values and principles to drive our quality journey. As part of the National PPI Festival, we invite you to join us in person to celebrate this achievement. Join Professor McCarron as she describes the process of developing the framework and how the values can be applied and implemented in PPI research.

Biography: Professor Mary McCarron, PhD RNID RGN BNS FTCD is Professor of Ageing and Intellectual Disability, Director of the Trinity Centre for Ageing and Intellectual Disability (TCAID) and Executive Director of the National Intellectual Disability Memory Service. She has held many senior leadership roles in Trinity College including Dean of the Faculty of Health Sciences and Head of the School of Nursing and Midwifery.

Professor McCarron is the founder and Principal Investigator for IDS-TILDA, the longitudinal comparative study on ageing in persons with intellectual disability including persons with Down syndrome, a global first. IDS-TILDA increases understanding about how lives and chronic conditions change over time for this population, drives changes on healthcare practice and national health policy. Professor McCarron has also led a longitudinal cohort study of dementia in people with Down syndrome spanning over 25 years, which has led to the development of Ireland's first dedicated National Memory Service for people with an intellectual disability, where she serves as Executive Director.

A champion of patient and public involvement in research (PPI) McCarron is Principal Investigator of PPI Ignite Programme at Trinity College Dublin, part of the national network among universities in Ireland funded by the HRB. She received the inaugural HRB Impact Award. She is co-applicant on the HRB's Clinical Research Network Awards for Dementia Trials Ireland (DTI), a world-class clinical trials' infrastructure to support and grow dementia intervention studies. In addition, she is the Irish Lead on the H21 Consortium working on Clinical and trial outcome measures for dementia in individuals with Down Syndrome,

Professor McCarron has been a key advisor on ageing and policy issues to various governmental and other groups at a national and international level and an active member of the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD).